SUDEP

“Pull quote: "Our mortality rate is 2-3 times that of the general population, between the seizure-related accidents, the suicides, the meds getting screwed up, SUDEP and status epilepticus.”

Friday!

“But they do know that SUDEP is more likely to happen to people with uncontrolled seizure disorders.”

Simon & Schuster: Knowing Jesse

“But would we have been better off knowing that someday SUDEP could take Jesse?”

Simon & Schuster: Knowing Jesse

“No one had explained the possibility of SUDEP to us, his parents.”

Simon & Schuster: Knowing Jesse

“The exact cause was probably SUDEP, Sudden Unexplained Death in Epilepsy, which is not well understood, even by epilepsy professionals.”

Simon & Schuster: Knowing Jesse

“Among patients with refractory seizures — ones that can't be controlled with medication — the risk factor for SUDEP is a little less than 1 percent a year — small, but not negligible.”

Newsweek: In the Grip of the Unknown

“Occasionally people with epilepsy will go to bed at night, apparently healthy, and die in their sleep; the autopsy may be inconclusive and the death is chalked up to SUDEP — Sudden Unexplained Death in Epilepsy.”

Newsweek: In the Grip of the Unknown

“While the potential of her death on any day is now less, because of SUDEP, because she still has seizures daily, just not constantly now, I still am tentative, only recently being able to consider real planning and to think of doing things for solely my benefit.”

Alone, and trying to understand

“Epileptic children face the possibility of such things as sudden unexplained death due to epilepsy SUDEP or death by suffocation when they have a seizure in their sleep and can't roll over.”

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